ETHICS
Now that I am officially an IVF patient, I am finding myself having to challenge some of my beliefs and rethink some of the ideas I have been carrying with me throughout much of my adult life.
For example, "60 Minutes" did a story this past Wednesday night about how PGD is enabling couples to have an opportunity to choose the sex of their baby. It was fascinating, and if you missed it, here is the synopsis from the program. There was a featured couple, who had three healthy sons and decided to undergo IVF and PGD for the sole purpose of having a daughter. All I could think while watching this couple was "those selfish bastards!" I mean, come on, this couple is perfectly fertile and they have three healthy, beautiful sons, and they aren't satisfied? They need to use this technology to ensure that they will have a baby girl?
A few statements from the program that I absolutely agreed with were from Dr. Mark Hughes, one of the pioneers of PGD. He says “Just because you technically can do something, it doesn’t mean you should.” PGD was developed to help pre-determine if an embryo may carry or be prone to having a genetic disease or disorder. “I went into medicine and to science to diagnose and treat and hopefully cure disease,” says Hughes. “Your gender is not a disease, last time I checked. There’s no pathology. There’s no suffering. There’s no illness. And I don’t think doctors have any business being there.” There are those on the other side of the coin who are financially benefitting by fulfilling these requests, and they even claim that couples are actually requesting not only gender selection, but eye color, hair color, etc. I find it scary that the response given to these couples is to "Call back in five or 10 years.” *shudder*
Anyways, after watching the program, I couldn't help but think about people who are anti-IVF. On some levels, I must admit that I actually get it. I do not agree with or side with the anti-IVFers, but to some extent I understand where they are coming from. I mean, you can easily make the arguement that we are "playing God" when it comes to IVF.
We are creating life outside of the human womb - tricky moral ground for some.
We are selecting the healthiest of the embryos that are created - goodbye, natural selection.
We are, in some cases, "discarding" the weak and unhealthy embryos - again, difficult moral ground, especially for pro-lifers.
And with some IVF patients, the need for "selective reduction" may arise.
I myself am a self-proclaimed wuss when it comes to debating highly sensitive ethical issues. In fact, I usually choose to avoid the debate all together. I have my opinions on those trickiest of moral questions, but I usually keep these opinions to myself, because I also know that I have the right to change my mind at any time. To some, that may appear that I have no conviction, but how I appear to others is not my main concern; mostly, it is simply easier for me not to get into a debate in the first place, because I don't think there is a completely right or wrong side on these highly emotional issues. What is right for you may be wrong for me, and that is that.
I have said before and I will say it again, I have learned not to judge other people's actions unless I have walked in their shoes, because you just don't know how you are truly going to feel about a situation until you are in it yourself. Having come to this conclusion in my life, I have applied this point of view to those big hot button issues out there - abortion, the death penalty, euthanasia, etc.
Let's take abortion, for example. Here is generally the way I have always felt about this issue: I am anti-abortion, but pro-choice. I believe that life begins at the moment of conception, and therefore abortion is NOT the choice I would ever make for myself; but, it is also not my place to make that decision for anyone else. A nice, safe stance to take, I have learned, provided that I never find myself in a position where abortion would be an option for me. My point of view makes certain assumptions: That I will never find myself pregnant as a result of a violent rape. That I will never find myself with a dangerous pregnancy that could likely result in my death if I proceed with it. That I am never an IVF patient who needs to sign consent forms regarding selective reduction.
My dear friend Jen took a stance recently on the abortion debate by stating that it is possible to be pro-life and yet not be freaky-deaky-obsessed-in-your-face about it. It sparked a healthy debate, and I am proud of her for coming out and saying "hey, this is what I believe, and I am not afraid to say so." But it certainly got me thinking. Selective reduction. Selective. Reduction.
Over the past two and a half weeks, the fertility-challenged portion of my life has felt like someone is permanently holding down the fast-forward on the TiVo remote. "Guess what, you'll be doing IVF this year!" "Guess what, let's begin as early as September," and most recently after my RE appointment this past Wednesday, "Guess what, on second thought, let's not wait until September, let's start with your August cycle!" I feel like I am on speed. I have had to frantically educate myself and arm myself with as much information on IVF as possible, in a very short time frame. So much of this is new territory for me because IVF was something that I thought would only remotely, potentially, be IN THE FUTURE. It was never something I expected to need. It was never something I thought we'd get to so soon. I thought I had time to learn. I was wrong.
The odds we have been presented with are these: we have a 50% chance of IVF working for us, given our health, our age, and our frustrating diagnosis of "unexplained infertility." My clinic will only transfer two embryos, and that being said we have a 25% of becoming pregnant with twins. As I was reviewing all the consent forms (hurry hurry, rush rush, got to get them all in before we start in two weeks!), the section on selective reduction stopped me cold. If one of the two embryos is developing poorly, it may cause harm to the other fetus and to the mother. In this case, we may choose selective reduction to remove the unhealthy fetus. As far as I am concerned, this is an abortion, something I claimed I would never, ever, allow myself to do.
Now, I am not so sure. Granted, these are extreme circumstances, and this is why I have tried to leave myself an "out" on these tricky ethical issues - an opening to allow myself to change my mind.
Anthony says, but what are the odds we'll actually have to make this decision?
We know they will transfer two embryos. We have been told that we have a 25% chance of having twins. The way I see it, that means there is a 75% chance that one or both of the embryos will not make it, and thus the decision to selectively reduce becomes a very prominent reality for us.
It has been easy to have an opinion on a subject that hasn't personally touched me. In fact, lots of people have opinions on lots of things that they have no first hand knowledge of. But staring at one of these hot button items head-on, it is tough.
If we find ourselves in the situation where it is wise to selectively reduce (kill) one of our babies, we will do it. I will be devastated, I will grieve, and I will not go a day in my life without thinking about that poor, helpless baby.
But I will justify it to myself and to others that I was doing it for the purest of all reasons - for the relentless quest to acheive a baby of my own - a healthy, biological baby. This cannot possibly be a bad motive, can it?
God, being infertile is just so hard in so many ways; I continue to learn about new hurdles and challenges with every passing day.
I will emerge a stronger person because of it. Cliche for sure, but man it is so true.